One of the biggest frustrations when seeking care for Lyme Disease, or suspected Lyme Disease, is finding a physician able and willing to care for someone whose disease is no longer in the acute, 0-30 days post-tickbite phase. While many doctors are simply not convinced that there are chronic forms of Lyme Disease,there are also many more who simply have no idea where to start when trying to diagnose or treat chronic forms of the disease.
Physicians who are members of ILADS (International Lyme and Associated Diseases Society) are often much more educated in terms of both diagnosis and treatment. But because there can be professional repercussions for those who are compassionate enough to work with those who suffer from Lyme Disease (in spite of IDSA and CDC denials of chronic forms of the disease), it can be difficult to locate these physicians. There are some who have had their licenses to practice taken from them. So understandably, they often they do not publicize the fact that they will treat these patients. Here are a few sources through which you may be able to find physicians in your state who actually know something about Lyme, its treatment and diagnosis. We refer to these physicians and health care providers as “Lyme Literate” (LLMD). If you follow the links below, you will find that it is a multi-step process to get a physicians name and you will sometimes have to access your own state-based Lyme Disease Association or Society before getting a name. But this will definitely help you get connected.
This will get you started in your search:
This site has a variety of ways to get information on LLMDs:
The referral link for ILADS:
If you have found other resources helpful in finding a Lyme literate physician, please help our readers by listing them below in the comment section. Thanks!