I have been working on developing some educational materials on the subject of Lyme Disease. It would be a HUGE help to me if you would be willing to take about 60 seconds and fill out a very short survey form that helps me know what you would find helpful as well as what your experience or exposure to Lyme Disease has been. Some of you may have already filled out a survey for me that I sent out by email some time ago, and if so, you don’t need to do it again. As a special Thank You, everyone who completes a survey gets a free copy of my report on the “Top 10 Things You Need to Know About Lyme Disease”. Thanks in advance for your help!
Here it is, just click on the link: Lyme Survey
One of the biggest frustrations when seeking care for Lyme Disease, or suspected Lyme Disease, is finding a physician able and willing to care for someone whose disease is no longer in the acute, 0-30 days post-tickbite phase. While many doctors are simply not convinced that there are chronic forms of Lyme Disease,there are also many more who simply have no idea where to start when trying to diagnose or treat chronic forms of the disease.
Physicians who are members of ILADS (International Lyme and Associated Diseases Society) are often much more educated in terms of both diagnosis and treatment. But because there can be professional repercussions for those who are compassionate enough to work with those who suffer from Lyme Disease (in spite of IDSA and CDC denials of chronic forms of the disease), it can be difficult to locate these physicians. There are some who have had their licenses to practice taken from them. So understandably, they often they do not publicize the fact that they will treat these patients. Here are a few sources through which you may be able to find physicians in your state who actually know something about Lyme, its treatment and diagnosis. We refer to these physicians and health care providers as “Lyme Literate” (LLMD). If you follow the links below, you will find that it is a multi-step process to get a physicians name and you will sometimes have to access your own state-based Lyme Disease Association or Society before getting a name. But this will definitely help you get connected.
This will get you started in your search:
This site has a variety of ways to get information on LLMDs:
The referral link for ILADS:
If you have found other resources helpful in finding a Lyme literate physician, please help our readers by listing them below in the comment section. Thanks!
Wherever you are in your journey to health, I hope that this blog will be an encouragement, inspiration, and source of knowledge that you can use, or share, in some way. Lyme disease is such a complex topic and impacts so many areas of life, that hope for normality, for basic functioning, and for regaining health often seems to grow dim. In this blog space I want to keep an open window for hope, for knowing that the darkness is not inevitable and that there is always room for growth, change, and development of who we are through the difficulties, pain, and daily routines that shape our lives.
I am always excited to hear from my readers, so please feel free to comment below. I’d love it if you choose to subscribe using the button to in the right column so that you have new posts automatically delivered to your inbox. That way you won’t miss any of them!